Access to Proper and Timely Care
Navigating the Health System
Opioid Induced Constipation awareness
Reflex Sympathetic Dystrophy
Thoracic Outlet Syndrome
Increase Abuse Deterrent Medications
Patient and Caregiver Education
Advocate for PAIN CME’s for Providers
Prescription Monitoring Legislation
Proper Authorization Legislation
Specialty Tier Legislation
Step Therapy Legislation
I advocate for all of us challenged with a chronic care condition involving chronic pain as well as their family, caregivers, healthcare professionals and public. One in three people (116 million) in the United States are affected with a condition that causes pain, so it is bound to affect you or someone you know. But until you feel the pain it is difficult to understand all of the challenges it brings on. Whether physical or mental, pain can and will consume you if you allow it to and only the patient can begin the process of healing! My hope is that my speaking engagements and books will inspire your eventual transformation filled with HOPE and motivation.
I was living my dream. I trained and performed cheerleading, dance and gymnastics starting at age 4 through college. Straight out of college I started my own cheer/dance training company. A year later I was hired by Washington State University as the head spirit program coach. I have been battling chronic pain since 1997. First with Endometriosis which resulted in a full hysterectomy and left oophorectomy. Then in 2002, I developed Reflex Sympathetic Dystrophy (RSD), is a progressive neuro-autoimmune condition that affects multiple system in the body and needs to be treated early so that disability does not take over and TMJ. I lost my physical abilities was bed bound for years. Using a wheelchair to get to get out of bed. It took 3 years to get a proper diagnosis and another 4 years to get the proper treatment. I know firsthand how hard it is to continue looking for relief, perfect answers, and then coming up against healthcare professionals who blow you off or do not believe what you are saying could actually be what you’re experiencing. As I search for a cure, I have become my own best advocate and work sharing the information so that others do not have the same life struggles that I have. Even after seeing over 100 healthcare professionals, having major surgeries I didn’t need, complications such as internal bleeding, medication interactions, kidney stones, tumors, severe constipation and so much more – I did not give up or give in! I was tested to my limits and realized they are past the boundaries I placed on myself. I had to become the Chief of Staff of my Own Medical Team. If I can do it, anyone can. We all just need support and HOPE!
Knowledge equals Power. We can look for options. Most importantly don’t let the guilt of others affect how we choose to take control of our lives by Barby Ingle
Your an angel Barby. You’ve help so many people and are an example of strength and perseverance to us all. by William Wells
Never Give Up! Never Give In! Go To Fight! Fight To Win!
The healthcare system is not always, what we are led to believe. They call doctors who treat patients, practicing physicians. People look up to their doctors and put total faith in them. I have learned though my experiences and through volunteering with the International Pain Foundation that I am responsible for me, just as you are for you. It is important to remember that doctors study a particular practice of medicine. Just because they are a Neurologist doesn’t mean they can treat Diabetic Neuropathy, Multiple Sclerosis, Lyme, and Reflex Sympathetic Dystrophy. Each doctor gets a small variety of a medical field and then finds a part of a specialty that they love and work on with great ease, research and education.
Unfortunately, so many other patients experience my story. I now share my knowledge of overcoming the challenges that we face every day with our activities of daily living. I had to learn the hard way and now want to pass on my knowledge to give hope and answers to all patients, caregivers and healthcare professionals. I hope by speaking out about my journey stops it from happening to anyone else.
RSD in Me!, and ReMission Possible are more than one patients story. They are books of hope, inspiration and positive life experiences, even when facing the toughest of times. The books offer practical advice, tips and tricks for better daily living and resolutions to the challenges of living with chronic pain. I have had a journey with twist and turns through the medical system and now encourage the importance of thinking positive even in the worst of times.
Barby… I have been in chronic pain for years since I had a motor cycle accident… Thank you so much for being my advocate. by Jason Smith
Many have said it before and I just want to say it again – THANK YOU for your innovative approach, your strength and courage in fighting back, your personal private innermost feelings good and bad and most of all for the AWARENESS, and VOICE you bring to this horrific challenging disease, or whatever they want to call it this week… You are an inspiration to everyone!! GO TEAM BARBY!!! by Nadine A
Some people survive life altering illnesses. You have thrived – by Jim Edgington