Author Barby Ingle shares her powerful story about how life-changing events force reflection and sprouts new beginnings.
I advocate for all of us challenged with a chronic care condition involving chronic pain as well as their family, caregivers, healthcare professionals and public. One in three people (116 million) in the United States are affected with a condition that causes pain, so it is bound to affect you or someone you know. But until you feel the pain it is difficult to understand all of the challenges it brings on. Whether physical or mental, pain can and will consume you if you allow it to and only the patient can begin the process of healing! My hope is that my speaking engagements and books will inspire your eventual transformation filled with HOPE and motivation.
I have been battling a neurological condition for since 2002. Reflex Sympathetic Dystrophy (RSD), is a progressive neuro-autoimmune condition that affects multiple system in the body and needs to be treated early so that disability does not take over. I know firsthand how hard it is to continue looking for relief, perfect answers, and then coming up against healthcare professionals who blow you off or do not believe what you are saying could actually be what you’re experiencing. As I search for a cure, I have become my own best advocate and work sharing the information so that you can be yours. Even after seeing over 100 healthcare professionals, having major surgeries I didn’t need, complications such as internal bleeding, medication interactions, kidney stones, tumors, severe constipation and so much more – I did not give up or give in! I was tested to my limits and realized they are past the boundaries I placed on myself. I had to become the Chief of Staff of my Own Medical Team. If I can do it, anyone can.
Never Give Up! Never Give In! Go To Fight! Fight To Win!
The healthcare system is not always, what we are led to believe. They call doctors who treat patients, practicing physicians. People look up to their doctors and put total faith in them. I have learned though my experiences and through volunteering with the Power of Pain Foundation that I am responsible for me, just as you are for you. It is important to remember that doctors study a particular practice of medicine. Just because they are a Neurologist doesn’t mean they can treat Diabetic Neuropathy, Multiple Sclerosis, Lyme, and Reflex Sympathetic Dystrophy. Each doctor gets a small variety of a medical field and then finds a part of a specialty that they love and work on with great ease, research and education.
Unfortunately, so many other patients experience my story. I now share my knowledge of overcoming the challenges that we face every day with our activities of daily living. I had to learn the hard way and now want to pass on my knowledge to give hope and answers to all patients, caregivers and healthcare professionals. I hope by speaking out about my journey stops it from happening to anyone else.
RSD in Me!, and ReMission Possible are more than one patients story. They are books of hope, inspiration and positive life experiences, even when facing the toughest of times. The books offer practical advice, tips and tricks for better daily living and resolutions to the challenges of living with chronic pain. My story goes through a 13+ year journey with twist and turns through the medical system and encourages the importance of thinking positive even in the worst of times.