rare diseases Archives - Barby Ingle https://barbyingle.com/tag/rare-diseases/ Author, Speaker, Pain Advocate Wed, 11 Mar 2026 16:35:08 +0000 en-US hourly 1 https://wordpress.org/?v=6.9.4 http://barbyingle.com/wp-content/uploads/2023/12/i-am-512x512-red.png rare diseases Archives - Barby Ingle https://barbyingle.com/tag/rare-diseases/ 32 32 Empowering Women’s Health in Chronic Pain https://barbyingle.com/empowering-womens/ https://barbyingle.com/empowering-womens/#respond Tue, 10 Mar 2026 22:01:16 +0000 https://barbyingle.com/?p=23667 Empowering Women's Health in Chronic Pain: Reflections Post-International Women's Day 2026As we move forward in March 2026, with International Women's Day just behind us on March 8th, it's a perfect time to reflect on the strides we're making—and the battles still ahead—in women's health. This year's theme, "Rights. Justice. Action. For ALL Women and Girls," resonates deeply with me as a chronic pain advocate, author, and candidate for Arizona House of Representatives in LD7. I've spent years fighting for those living with rare diseases and chronic pain, conditions that disproportionately affect women. Women bear a unique burden when it comes to chronic pain. Conditions like endometriosis, fibromyalgia, complex regional pain syndrome (CRPS), and neuromyelitis optica spectrum disorder (NMOSD) often strike us harder, yet they're under-researched and underfunded. March is NMOSD Awareness Month, shining a light on this rare autoimmune disease that can cause severe pain, vision loss, and mobility issues. Recent news highlights the urgent need for change. Leaders worldwide are calling out biases in women's health research and funding, emphasizing that addressing these gaps could dramatically improve quality of life for billions of women. Organizations like the World Health Organization are pushing for gender equality in health, ensuring all women and girls achieve the highest standard of wellbeing. As we celebrate Women's History Month and push forward, let's commit to action. Join a support group, attend an event, or advocate for better funding in women's health research. Remember, hope is real, and together, we can overcome. Stay strong, Arizona! Read the full post for more on advocacy, events, and my journey.

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]]> https://barbyingle.com/empowering-womens/feed/ 0 Seeing the Whole Picture with Sequencing https://barbyingle.com/seeing-the-whole-picture-with-sequencing/ https://barbyingle.com/seeing-the-whole-picture-with-sequencing/#respond Wed, 18 Dec 2024 23:25:46 +0000 https://barbyingle.com/?p=7967 Whole Genome Sequencing: Illuminating the Full Spectrum of Rare Diseases and Validating…

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]]> https://barbyingle.com/seeing-the-whole-picture-with-sequencing/feed/ 0 Barby’s spotlight on advocacy work https://barbyingle.com/barbys-spotlight-on-advocacy-work/ https://barbyingle.com/barbys-spotlight-on-advocacy-work/#respond Tue, 01 Oct 2024 18:36:40 +0000 https://barbyingle.com/?p=7930 Through hard work and dedication to improving healthcare, I have become a…

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]]> https://barbyingle.com/barbys-spotlight-on-advocacy-work/feed/ 0 March Madness! https://barbyingle.com/march-madness/ https://barbyingle.com/march-madness/#respond Wed, 06 Mar 2019 23:22:02 +0000 http://barbyingle.com/?p=3125   Fresh off of a return from rare disease week in Washington…

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