July 28, 2009 at 12:55pm
Boy is time flying by. I wanted to give an update on the health issues and fundraising. I have had a rough few weeks but I did get my Table Tilt Exam and a new EKG. The table tilt exam came back in the normal range, however the results of this EKG were the same as the original – abnormal. In spite of that, the Cardiac doctor approved me for the Ketamine Procedure. Now it is a waiting game.
The table tilt exam was different than I expected. The strap you to a table with 3 straps and then tilt the table up to a 70 degree angle. I was in that position for 40 minutes and it was sheer pain the whole time. I got a little dizzy and nauseous, but stuck it out so that I could get cleared. My left arm had a blood pressure cuff, iv line and an oxygen monitor. My blood pressure was so low that the machine only picked it up every 2-3 times it tried. Every time the BP was taken, the iv would get cut off and blood would come back out the iv tube. By the time the blood was put back in and saline was flowing again, it was time for another BP, so I don’t think I got any iv fluid. Once it was over, they bring the bed back down to parallel with the floor. But for me it felt like I was upside down. The feeling lasted about 20 minutes. They then did the EKG which came back abnormal as I said above. I will see the cardiac doctor in the next Thursday to discuss the exact problem with my heart and what we can do about it, if anything. RSD does affect your autonomic system, so to me it would seem that there would be an effect on the heart since it is an automatic organ. I will let you know.
In the meantime, still on no pain meds, trying to keep mind on positive thoughts and look to the future. I can’t wait to drive and do simple things like open a jar or go for a run. I still need lots of prayers! It is monsoon season here in AZ and although I love the hot weather (105 degrees is perfect for me), the storms bring in extra pain for me.
For all of you in the DC/NOVA area the Power of Pain Foundation( I am apart of) is doing the 3rd annual Comic Pain Relief benefit show. It will be at George Mason University Center for Arts on September 12, 09 (Sat.). The comedian is hypnotist- Tom Deluca. He will be choosing 20 willing audience members to hypnotize on stage. The show benefits chronic pain patients with durable medical equipment and other needs as well as awareness events. I hope some of you can make it. More info at www.powerofpain.org and tickets can be purchased at www.tickets.com or 703-993-2787. It will be a great night of laughs and help patients like me. The foundation also needs about 10 more volunteers, if your around to help out. Email info@powerofpain.com for more info if you’re interested in volunteering.
My parents are still working on getting a T.G.I. Friday’s – Benefit Dinner’s set up (Woodbridge & Richmond), for me. I have raised $2,800 and have about $12-15k in promises. If all of them come in then I need about $25k more. I got a call from the doctor’s office they said anywhere between now and March 2010 is when I will be going in for the Ketamine Procedure. They are only taking one at a time right now, and the nurse said they will soon be taking 2 at a time, which will speed things up!!! YEAH!!! We’re still taking donations at Wells Fargo it is under the “Barby Ingle’s Medical Fund” account number 227-327-6200, if any of you are able to make a donation. For anyone in the Phx area. The Beall Foundation is hosting a fund raiser for me wed, July 29 at Streets of NY at 6638 E Superstition Blvd, just off of Superstition Springs Blvd/Power Roads in Mesa. It’s a LIVE auction and dinner starting at 6:00PM. Some of the items that we have received to auction off are: an autographed picture from the Phoenix Coyotes, 2 massages, carpet cleaning, vacation trip, bottles of wine, Hooter’s gift cards, pizzas, & several others items!
