Fresh off of a return from rare disease week in Washington DC I am excited to march into March with preparations for our next edition of iPain Living Magazine (www.iPainLiving.org) and getting set for HealtheVoices conference in April.
As for Rare Disease week… it was full of advocacy meetings, education, and even a visit to the NIH. You can read my March article for Pain News Network for more details on all of the activities of Rare Disease Week 2019.
HealtheVoices™ 2019 will be a true three-day event, including opportunities to interact with your fellow advocates and hear from experts and each other. If you are not able to make it to HealtheVoices you can participate virtually. Check out their website link above for more details and information. Over the weekend, we learn about many aspects of advocating online in the health community. We hope you will leave with new knowledge and an expanded network of engaged allies who advocate for a variety of health conditions.
March is my month to prepare for April and May advocacy events as well as rest up and make sure I am taking care of myself and health so that I can function as best as I can during the 3 days in April and 4 days in May where I have events. As a chronic pain patient this is why its so important for me to organize and spread events out so that I do do a few days at a time and make the impact I would like to in such a short amount of time using the short amount of energy I have, putting my energy penny principle in full effect!
