This is from an interview I did in January 2012. You can read the full article from my media page.
NEW YORK (REUTERS) — When your health insurance provider denies an
experimental treatment or a high-cost drug, how much are you willing to pay for
the care you believe you need?
Barby Ingle, a former cheerleading and dance coach at Washington University
who now lives in a Phoenix suburb, has been forced to face this question.
Her troubles began in 2002 when her car collided with another in a parking lot.
The accident was minor, but her health problems lingered. She went from doctor
to doctor; drugs, physical therapy and surgery did not help and her condition
worsened. She started to feel a burning pain in her neck and arms, her skin
began to discolor and she had trouble moving. Finally, she had to stop working.
It wasn’t until three years later that an anesthesiologist put it all together. Ingle,
now 39, had a rare progressive disease called Reflex Sympathetic Dystrophy, or
RSD. The doctor prescribed a series of procedures called radiofrequency
ablations, which were thought to help people with RSD.