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Barby’s Bucket List update

Barby’s Bucket List Update… This is ongoing and ever changing as I grow and make accomplishments. I think it is important to have life goals and things that we can look forward to doing. I dont know what order these will happen but I am constantly working on accomplishing them in conjunction with my life purpose to be a Cheerleader of HOPE and a Dancer for LIFE. Follow along with me to see which ones … Read the rest

 

Why is it important to keep your own copies of your medical records, Part 2

My records have major mistakes
By Barby Ingle
(excerpt from The Pain Code Book)

Your medical record is comprised of all information generated during your treatment with all healthcare providers. The providers keep track of many aspects of your treatment, including personal, financial, social, and medical information. Many providers are using written forms and notes, but over the past few years, there are great electronic medical record keeping programs that are coming to the market. … Read the rest

 

CureClick Ambassador’s Best Share Practices for Social Media

BI-Logo-copyCureClick Ambassador’s Best Share Practices for Social Media
By Barby Ingle, Advisory Board Member, CureClick
President, Power of Pain Foundation
March 21, 2015

I have been using social media and blogging since 2009 and realized that there are some posts that go viral or are liked, shared, followed, etc… more than others. When I became a CureClick Ambassador I wanted to be sure to have mindful posts and be able to share on all of … Read the rest

 

Why Barby Ingle Became a CureClick Ambassador and Now Serves On the CureClick Advisory Board
by Barby Ingle
Advisory Board Member, CureClick
President, Power of Pain Foundation

CC_BADGE_Ambassador_TAGBack in November, 2014 I received a request to become a CureClick Ambassador. What is this all about, I thought to myself? Is it helping pain patients and the chronically ill? After checking it out, I realized that this was a perfect tool to share clinical research trials with the pain community I work with. I also realized that is has far more reach than that, as my friends and followers pass it on to their connections. I personally have family members who have suffered multiple strokes, TBI and Alzheimer’s, COPD, vascular issues, quad-bypass surgeries, diabetes, RSD, etc. With over 130 million Americans living with a chronic illness it affects our entire population, either as a patient, caregiver, or provider. Since my start I have help recruit trail participants for chronic obstructive pulmonary disease (COPD), HR+, her2- breast cancer, memory loss or alzheimer’s disease, people at risk of developing early alzheimer’s disease, rheumatoid arthritis, severe asthma, type-2 diabetes with severe kidney disease and type-2 diabetes. There are more and more trials being updated and posted frequently. Three upcoming trials that I know of are pre-alzheimer’s, non-small cell lung cancer stage IV, and prostate cancer.

 

I love that I can share valuable education about the importance of clinical trials and help teach others about the research process. In the past few months I have been spreading the word about a new trials in addition to sharing statistics and why that trial is so important. I decided to write this blog post about my experiences for the last 5-6 months so that my friends, followers and members of the POPF understand why I got involved and why I am so proud to have been asked to be on the advisory board.

 

The resource area on the CureClick site include overview videos, more info on how rewards work, how I am being compensated, etc. For me personally, I have decided to donate the funds I raise to help the Power of Pain Foundation. My compensation comes in the form of Amazon Gift Cards. I deposit these cards into the POPF Amazon account, and when we need supplies or resources off of Amazon, we are able to purchase them with these funds. It has been working out great. To date I have raised $200 ($150 as an advisory board member, and $50 due to participation of those who have qualified to participate in the trials).

 

As new trials come open I will post information and a link on my social media accounts. My friends and followers will be informed readers when it comes to where to go to read about the trial and how to apply if they feel they are a good fit for the trial. All of the information I provide in my posts has been carefully worded, and then meticulously reviewed by a federally-regulated governing body known as the Institutional Review Board (IRB). This way my readers can know it is legit and accurate. A typical post from me will be with a graphic with information/education about the disease the trial represents, text such as the study title, purpose, study locations, eligibility criteria, and the link to check it out for yourself. I want your participation so that those you love in your life to get help with their illness in a proper and timely manner. The most important part to me is that I am educating all of you about trials and disease specific information on a variety of chronic diseases.

 

Can you become a CureClick Trial Ambassador? You can learn more about CureClick at http://curec.lk/1Gb4toG

 

Game Plan; Empowerment Plus

“You have a better game plan than the {others} – and that is the name of the game – to constantly dream of better ways and a better future for those we care about and for our society. We all need to work towards better models of care and better care. I call your game plan “Empowerment Plus”, for it focuses in on empowering the person in pain. The {others} is old wine in new … Read the rest

 

AFTER THIS WHAT COMES NEXT?

I wrote this in 2004 after undergoing multiple life threatening surgeries/complications, searching for a diagnosis and proper healthcare after being struck down with what I now know is reflex sympathetic dystrophy. My first marriage collapsed, I was losing everything materialistic. I was on food stamps, and I was lost physically, mentally and spiritually. I sent this to my family members after my inner voice reminded me of why I am here and that my purpose Read the rest

 

HAVE SEVERE ASTHMA? PARTICIPATE IN A CLINICAL STUDY THAT MAY HELP

Hi everyone! There is a clinical trial going on right now that assesses the safety and effectiveness of the investigational drug when administered in severe asthma patients whose symptoms are otherwise uncontrolled with current standard therapy. Despite standard treatment, up to 50% of asthma patients have symptoms that are not well controlled, with a negative impact on quality of life.

 

Looking for BREAST CANCER CLINICAL TRIAL PARTICIPANTS

Breast cancer is the most common cancer among American women, where 1 in 8 women in the US will develop breast cancer during their lifetime. The majority of breast cancers are hormone-receptor positive (HR+), which means the cancer cells grow in response to hormones. Such cancers are typically treated with hormonal therapy.