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Dental Tips When You Live With A Chronic Pain Disease

When you live with chronic illness and pain dental health becomes even more important. Here are a few of the tips I have learned over the past 20 years. 

  • Ask for “close your mouth breaks” if needed.
  • Brushing after vomiting can break down the enamel.
  • Have your teeth cleaned at least twice a year.
  • It is important for your dentist to know about CHRONIC PAIN.
  • Oral care starts at home.
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How To Write A Pain Journal Entry

Undoubtedly, there has been progress made in recent years by healthcare professionals and patients towards understanding and properly managing pain. Unfortunately, pain still poses a problem for patients who are under-diagnosed, over-diagnosed or misdiagnosed. Controlling the pain you are in is essential to quality of life. Knowing the characteristics of pain and why it is happening give you an advantage in dealing and controlling aspects of pain. Taking control of your life and being responsible … Read the rest

 

Helpful Resources For Pain Patients

International Pain Foundation www.internationalpain.org
Patient Advocate Foundation www.patientadvocate.org
U.S. Department of Health and Human Services www.hhs.gov
Substance Abuse & Mental Health Services www.samhsa.gov
Social Security Disability Offices www.ssa.gov
Medicare Office www.medicare.gov
Medicare Rights Center www.medicarerights.org
Cares Alliance www.caresalliance.org
The Medicine Abuse Project www.Drugfree.org
RX Assist www.rxassist.org
Patient Physician Trust Partnership www.pptp.org
Partnership for Prescription Assistance www.pparx.org
Patient Advocate Foundation www.patientadvocate.org
Pain Legislation www.patientawareness.org
RX Safety Matters www.RxSafetyMatters.org
Pain Advocacy Community www.InTheFaceofPain.com
Suicide Prevention 800-SUICIDE (784-2433)
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CureClick Hypertension All-Digital Research Trial

CureClick Research

I have been working with CureClick for a few years now. I am currently serving on its Board of Advisers. As such, I get to preview and share some of the best research trials available to the health community. I have written about my connection with CureClick in the past but a few days ago a new opportunity came through. Something new to CureClick and me, and I got all excited. It is … Read the rest

 

Really?

There is absolutely no doubt in my mind that there is a lot of misinformation out in the pain community. I hear it in phone calls, emails, and see it on social media posts. Last week I was speaking to a woman who helped start a new fb group. She wanted me and International Pain Foundation to help support their upcoming survey after telling me it was just like the one the iPain and Pain … Read the rest

 

DO YOU HAVE RELAPSED CLL?

If you have relapsed Chronic Lymphocytic Leukemia (#CLL), you can help forward medical research by participating in an important new clinical trial to test if adding an investigational medication (ublituximab) to ibrutinib (Imbruvica®), an FDA-approved treatment, improves outcomes for CLL patients with high-risk disease.

If you are interested, the full study details and eligibility criteria are listed here.

More about the study:

• The investigational drug is administered by infusion and the FDA approved … Read the rest

 

cure click prostate cancer

There is a new clinical trial seeking participants who have Prostate Cancer. Prostate cancer is the second most frequently diagnosed cancer globally. A significant proportion of patients who are treated have their prostate cancer come back or spread. The purpose of this clinical trial is to assess if the study medicine helps prevent or slows your cancer from spreading to other parts of your body.

Here is some basic information: 

Participants must:

  • be male
  • at least 18 years old
  • have been diagnosed with prostate cancer

Participants must not:

  • have prostate cancer that has spread to the bone
  • be currently participating in any other clinical trial

The full study details and eligibility criteria are listed here.

Please complete the online questionnaire to check if you’re eligible for the trial.

If you’re not familiar with clinical trials, here are some FAQs:

What are clinical trials?

Clinical trials are research studies to determine whether investigational drugs or treatments are safe and effective for humans. All new investigational medications and devices must undergo several clinical trials, often involving thousands of people.

Why participate in a clinical trial?

You will have access to new investigational treatments that would be available to the general public only upon approval. You will also receive study-related medical care and attention from clinical trial staff at research facilities. Clinical trials offer hope for many people and an opportunity to help researchers find better treatments for others in the future.

Learn why I’m talking about Clinical Trials

 

RHEUMATOID ARTHRITIS CLINICAL TRIAL SEEKING PARTICIPANTS

Rheumatoid Arthritis is a chronic inflammatory disorder affecting small joints in the hands and feet that affects about 1.5 million people in the United States today.

There is a clinical study available to those with Rheumatoid Arthritis, where the purpose of the study is to compare the proposed biosimilar study drug rituximab (GP2013) against a standard approved treatment rituximab (Rituxan®) to see if the study drug is as safe and effective in treating rheumatoid arthritis.

More about the study:

  • The study drug (GP2013 and Rituximab) is administered by IV Injection (IV).
  • At least 174 people have already taken this drug in clinical trials

If you are interested, the full study details and eligibility criteria are listedhere.

Eligibility Criteria:

Participants must:

  • be at least 18 years old
  • have been diagnosed with rheumatoid arthritis for at least 6 months
  • have had inadequate response or intolerance to DMARDs (disease-modifying anti-rheumatic drugs) and 1 – 3 anti-TNF (tumor necrosis factor) therapies
  • have received methotrexate for at least 4 months with 25 mg/week as the maximal dose

Participants must not:

  • have significant liver disease, or congestive heart failure
  • be taking a high potency of opioid analgesics (e.g. methadone, hydromorphone, morphine)

Please complete the online questionnaire to check if you’re eligible for the trial.

If you’re not familiar with clinical trials, here are some FAQs:

What are clinical trials?

Clinical trials are research studies to determine whether investigational drugs or treatments are safe and effective for humans. All new investigational medications and devices must undergo several clinical trials, often involving thousands of people.

Why participate in a clinical trial?

You will have access to new investigational treatments that would be available to the general public only upon approval. You will also receive study-related medical care and attention from clinical trial staff at research facilities. Clinical trials offer hope for many people and an opportunity to help researchers find better treatments for others in the future.

Learn why I’m talking about Clinical Trials

 

Game Plan; Empowerment Plus

“You have a better game plan than the {others} – and that is the name of the game – to constantly dream of better ways and a better future for those we care about and for our society. We all need to work towards better models of care and better care. I call your game plan “Empowerment Plus”, for it focuses in on empowering the person in pain. The {others} is old wine in new … Read the rest

 

Life with an Invisible Illness/Disability

What do you say to others when you live with an invisible illness/disability – Chronic Pain

Barby Ingle- Excerpt from RSD in Me©

You can never take back information once it is shared but you can always wait to let people know later. If you choose to disclose that you have chronic pain, decide when and how to do so. If there is time to prepare ahead of time, it is a good idea. … Read the rest