What can a patient do to stay on track with my medications

As a patient with a chronic care disease I have found some common reason I don’t to take my medications and things that have helped me stay on track that I am going to share in hopes of helping other patients. When a provider ordered a new pill I didn’t ask questions, I just took it. After having complications with multiple medications I had to change my approach. I began to speak with my pharmacist … Read the rest


In Honor of Love

In Honor of Love By Barby Ingle, Author of Real Love and Good Sex for Pain Patients and their Partners – February is the month of Love but for a pain patient and their significant other intimacy may suffer on a regular basis. We know intimacy is an important aspect in keeping a healthy lifestyle. Often times, chronic pain patients forget that sexuality is an important part in a partnered relationship when their pain … Read the rest


Our Future

To make informed and wise decisions about your treatment plan, doctors, hospitals and taking your life back from the pain in you, become educated. This book series is one step in the education process. Places to look for additional Information that is up-to-date with RSD issues are:


  • Clinical trials and Studies
  • Disease organizations
  • Internet health sites
  • Support groups for RSD or Chronic Pain


The important part for you is sorting through all of … Read the rest


He Makes Me Bleed

Another RSD sufferer and sister sharing her pain and story!

By Melanie McDowell
June 1974 – July 2006
He makes me bleed with each caress,
my body and mind he does possess.
Not my spouse, my lover or even my friend,
on his brutal presence I’ve come to depend.
I tell him to leave. Just leave me alone!
Yet he stalks me, hurts me, then laughs while I moan.
He is with me on waking … Read the rest


Sometimes I Just Wanna Cry

This just touched my heart so much as it comes from a 14 yr old girl who suffers with RSD, same as I do.

By Adela Partida 

Sometimes I just wanna cry
Sometimes I just want to hide 
Anything to run away from the pain 
To others I’m fine
But only I know 
How I really am

I’m a fighter 
I fight everyday of my life 
Burning for a cure
For some kind of relief Read the rest


A Friend Who Cares!

A friend who cares : Barby Ingle

“When we honestly ask ourselves which person in our lives mean the most to us, we often find that it is those who, instead of giving advice, solutions, or cures, have chosen rather to share our pain and touch our wounds with a warm and tender hand. The friend who can be silent with us in a moment of despair or confusion, who can stay with us in

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Print Interview of Barby Ingle by Sylvie Ghysels, AFMASA Board Member & Belgian Delagate

Interview with Mrs. Barby Ingle,
Author &, Executive Director of the Power of Pain Foundation,
CRPS/RSD Patient, RSD/CRPS advocate for CRPS sufferers

  1. Barby, how did you develop CRPS? How and when were you diagnosed?

I developed RSD September 26, 2002 after a minor auto accident. I was diagnosed with a brachial plexus nerve injury because of the accident, which spread to full body RSD with organ involvement. It was not until May 2005, that I

Read the rest

5 fun facts about Barby *\O/*

5 fun facts about Barby *\O/*
August 17, 2013 at 12:25pm
My favorite thing to eat?
Candy and Carbs. Yes, I am a carboholic!

My favorite thing to do?
Anything media related

What do I do in my spare time?
hum… sleep, rest, sleep, watch ken play assassins creed, and watch movies and documentaries.

My biggest pet Peeve?
Being called Barb or Barbara, neither of which are my name. I think people think Barby is … Read the rest


My perspective on Paula

My perspective on Paula
May 19, 2013 at 5:43pm
I know this won’t change some people’s minds, but I am not doing it for them, I am doing it for the people who can get help, motivation, inspiration, and HOPE from this interview. Paula Abdul has a cover story coming out in Pain Pathways SUMMER 2013 edition. It is the first time she speaks unedited about her RSD story. We need to support fellow RSD’ers. … Read the rest


Barby Update Oct. 2012

Going through some acute issues right now. Saw surgeon on Thurs. they have an anesthesiologist that will do the Ketamine Protocol, but he wanted me to do one more test before we do the surgery, as he said “with RSD less trauma is more”, which I like, he seems to be very nice and understand RSD pretty well. He also didn’t trust the hospital doctor from last weekend. So was going to get the test … Read the rest