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CLINICAL TRAILS; The Benefits and Risks

CLINICAL TRAILS; The Benefits and Risks
By Barby Ingle

I have been living with chronic diseases for the past 20 years. During this time, I have participated in several clinical trials. Some were big, some small, some were online only, some were produced by medical professionals. I know that there are some risks and benefits to the trials and know that they are not right for everyone. If you are …

 

The Importance of Health Communities

THE IMPORTANCE OF HEALTH COMMUNITIES; Medical Research Groups, Patient Advocacy Groups, & Patient Support Groups

By Barby Ingle, Columnist  

 

In 1995, I became the head coach for the Washington State University’s Spirit Program and a successful business owner. I was very athletic and health conscious. In 2002, I was in a minor car accident, which developed from a whiplash and brachia plexus injury into Reflex Sympathetic Dystrophy. I lost my job, marriage and sense …

 

10 ACTIONS TO MAKE LIFE MORE POSITIVE AND UPLIFTING FOR YOURSELF

10 ACTIONS TO MAKE LIFE MORE POSITIVE AND UPLIFTING FOR YOURSELF – by Barby Ingle

  1. Choose happiness.
  2. Create goals and more towards accomplishing them.
  3. Get involved in projects that you can be interested in and successfully complete.
  4. Keep yourself surrounded with happy people.
  5. Look at the bright side of challenges.
  6. Motivate yourself.
  7. Practice meditation and controlling your thoughts.
  8. Smile big and often.
  9. Visualize success.
  10. When anxiety and stresses are high, turn it over to God.
 

How To Write A Pain Journal Entry

Undoubtedly, there has been progress made in recent years by healthcare professionals and patients towards understanding and properly managing pain. Unfortunately, pain still poses a problem for patients who are under-diagnosed, over-diagnosed or misdiagnosed. Controlling the pain you are in is essential to quality of life. Knowing the characteristics of pain and why it is happening give you an advantage in dealing and controlling aspects of pain. Taking control of your life and being responsible …

 

Helpful Resources For Pain Patients

International Pain Foundation www.internationalpain.org
Patient Advocate Foundation www.patientadvocate.org
U.S. Department of Health and Human Services www.hhs.gov
Substance Abuse & Mental Health Services www.samhsa.gov
Social Security Disability Offices www.ssa.gov
Medicare Office www.medicare.gov
Medicare Rights Center www.medicarerights.org
Cares Alliance www.caresalliance.org
The Medicine Abuse Project www.Drugfree.org
RX Assist www.rxassist.org
Patient Physician Trust Partnership www.pptp.org
Partnership for Prescription Assistance www.pparx.org
Patient Advocate Foundation www.patientadvocate.org
Pain Legislation www.patientawareness.org
RX Safety Matters www.RxSafetyMatters.org
Pain Advocacy Community www.InTheFaceofPain.com
Suicide Prevention 800-SUICIDE (784-2433)
 

There’s Such a Hysteria Going On When It Comes To Opioid Medication

There’s Such a Hysteria Going On When It Comes To Opioid Medication
By Barby Ingle

A few weeks ago I got a phone call from a ‘pain patient’ who said he was from California. He kept referring to questions that didn’t make sense based on his reported pain story. He ended his phone call saying he needed me to make sure that everyone vote for (his candidate of choice). I laughed first as I don’t …

 

If Prince Had Gotten Proper Follow-Up, Could His Death Have Been Avoided?

By Barby Ingle and Emily Ulrich

 

When Prince passed away I was dealing with some migralepsy seizures and knew that I wasn’t going to say this how I wanted to. I turned to another writer and iPain Delegate Emily Ulrich to help me get my idea out. We worked to get this published but editors didn’t want to put it out without a doctor or healthcare professional who would sign on and be interviewed …

 

Really?

There is absolutely no doubt in my mind that there is a lot of misinformation out in the pain community. I hear it in phone calls, emails, and see it on social media posts. Last week I was speaking to a woman who helped start a new fb group. She wanted me and International Pain Foundation to help support their upcoming survey after telling me it was just like the one the iPain and Pain …

 

DO YOU HAVE RELAPSED CLL?

If you have relapsed Chronic Lymphocytic Leukemia (#CLL), you can help forward medical research by participating in an important new clinical trial to test if adding an investigational medication (ublituximab) to ibrutinib (Imbruvica®), an FDA-approved treatment, improves outcomes for CLL patients with high-risk disease.

If you are interested, the full study details and eligibility criteria are listed here.

More about the study:

• The investigational drug is administered by infusion and the FDA approved …

 

April 17 to raise awareness about hemophilia and other inherited bleeding disorders

Join the World Federation of Hemophilia and all CureClick Ambassadors on April 17 to raise awareness about hemophilia and other inherited bleeding disorders. Globally 1 in 1,000 people has a bleeding disorder. Most are not diagnosed and do not receive treatment. Together we can change that. World Hemophilia Day provides an opportunity to talk to your family and friends, colleagues, and caregivers to raise awareness and increase support for those living with an inherited bleeding …