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Making the holidays Great despite chronic pain

Ken and Barby for the HolidaysEver thought, how am I going to get my holidays? Here are some easy ways to get ready and also shopping tips that Ken Taylor and I came up with to help those with chronic pain family members to still have an enjoyable holiday season. We wish each of you Happy Holidays and Merry Christmas!

What to Do to make your Holidays GREAT: 

1. PRIORITIZE. Focus on accomplishing the most … Read the rest

 

CLINICAL TRAILS; The Benefits and Risks

CLINICAL TRAILS; The Benefits and Risks
By Barby Ingle

I have been living with chronic diseases for the past 20 years. During this time, I have participated in several clinical trials. Some were big, some small, some were online only, some were produced by medical professionals. I know that there are some risks and benefits to the trials and know that they are not right for everyone. If you are considering participating in a clinical … Read the rest

 

The Importance of Health Communities

THE IMPORTANCE OF HEALTH COMMUNITIES; Medical Research Groups, Patient Advocacy Groups, & Patient Support Groups

By Barby Ingle, Columnist  

 

In 1995, I became the head coach for the Washington State University’s Spirit Program and a successful business owner. I was very athletic and health conscious. In 2002, I was in a minor car accident, which developed from a whiplash and brachia plexus injury into Reflex Sympathetic Dystrophy. I lost my job, marriage and sense … Read the rest

 

Helpful Resources For Pain Patients

International Pain Foundation www.internationalpain.org
Patient Advocate Foundation www.patientadvocate.org
U.S. Department of Health and Human Services www.hhs.gov
Substance Abuse & Mental Health Services www.samhsa.gov
Social Security Disability Offices www.ssa.gov
Medicare Office www.medicare.gov
Medicare Rights Center www.medicarerights.org
Cares Alliance www.caresalliance.org
The Medicine Abuse Project www.Drugfree.org
RX Assist www.rxassist.org
Patient Physician Trust Partnership www.pptp.org
Partnership for Prescription Assistance www.pparx.org
Patient Advocate Foundation www.patientadvocate.org
Pain Legislation www.patientawareness.org
RX Safety Matters www.RxSafetyMatters.org
Pain Advocacy Community www.InTheFaceofPain.com
Suicide Prevention 800-SUICIDE (784-2433)
Read the rest
 

If Prince Had Gotten Proper Follow-Up, Could His Death Have Been Avoided?

By Barby Ingle and Emily Ulrich

 

When Prince passed away I was dealing with some migralepsy seizures and knew that I wasn’t going to say this how I wanted to. I turned to another writer and iPain Delegate Emily Ulrich to help me get my idea out. We worked to get this published but editors didn’t want to put it out without a doctor or healthcare professional who would sign on and be interviewed … Read the rest

 

DO YOU HAVE RELAPSED CLL?

If you have relapsed Chronic Lymphocytic Leukemia (#CLL), you can help forward medical research by participating in an important new clinical trial to test if adding an investigational medication (ublituximab) to ibrutinib (Imbruvica®), an FDA-approved treatment, improves outcomes for CLL patients with high-risk disease.

If you are interested, the full study details and eligibility criteria are listed here.

More about the study:

• The investigational drug is administered by infusion and the FDA approved … Read the rest

 

April 17 to raise awareness about hemophilia and other inherited bleeding disorders

Join the World Federation of Hemophilia and all CureClick Ambassadors on April 17 to raise awareness about hemophilia and other inherited bleeding disorders. Globally 1 in 1,000 people has a bleeding disorder. Most are not diagnosed and do not receive treatment. Together we can change that. World Hemophilia Day provides an opportunity to talk to your family and friends, colleagues, and caregivers to raise awareness and increase support for those living with an inherited bleeding … Read the rest

 

Colorado Department of Health Care Policy and Financing (adf review)

March 21, 2016

Kelli Metz
Clinical Services Pharmacist
Colorado Department of Health Care Policy and Financing
1570 Grant Street
Denver, CO. 80203

RE:  April 5 PDL Drug Class Review (Abuse-Deterrent Formulations)

Dear Kelli,

On behalf of thousands of Coloradans who live with life-altering and debilitating pain, we urge you to protect and enhance access to safe medications.  It is critical that Colorado Medicaid cover the full range of treatments available for pain in the safest … Read the rest

 

Barby’s Bucket List update

Barby’s Bucket List Update… This is ongoing and ever changing as I grow and make accomplishments. I think it is important to have life goals and things that we can look forward to doing. I dont know what order these will happen but I am constantly working on accomplishing them in conjunction with my life purpose to be a Cheerleader of HOPE and a Dancer for LIFE. Follow along with me to see which ones … Read the rest