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Reality Rally Fundraiser to help Michelle’s Place

Reality Rally Fundraiser to help Michelle’s Place w breast cancer patients. 

Please help us raise funds for Michelle’s Place to help them support all the clients who need services during the fight of their lives with breast cancer. Any amount is greatly appreciated. This is my donation link, https://realityrally.givecorps.com/projects/18087-ken-and-barby-s-fundraiser Please donate and thank you” – Ken and Barby

https://shouttag.com/!/RealityRally/snp2Ow#snp2Ow

Reality Rally is the biggest gathering of Reality TV Celebrities in …

 

10 ACTIONS TO MAKE LIFE MORE POSITIVE AND UPLIFTING FOR YOURSELF

10 ACTIONS TO MAKE LIFE MORE POSITIVE AND UPLIFTING FOR YOURSELF – by Barby Ingle

  1. Choose happiness.
  2. Create goals and more towards accomplishing them.
  3. Get involved in projects that you can be interested in and successfully complete.
  4. Keep yourself surrounded with happy people.
  5. Look at the bright side of challenges.
  6. Motivate yourself.
  7. Practice meditation and controlling your thoughts.
  8. Smile big and often.
  9. Visualize success.
  10. When anxiety and stresses are high, turn it over to God.
 

Dental Tips When You Live With A Chronic Pain Disease

When you live with chronic illness and pain dental health becomes even more important. Here are a few of the tips I have learned over the past 20 years. 

  • Ask for “close your mouth breaks” if needed.
  • Brushing after vomiting can break down the enamel.
  • Have your teeth cleaned at least twice a year.
  • It is important for your dentist to know about CHRONIC PAIN.
  • Oral care starts at home.
  • Poor brushing can come from
 

CELEBRITIES WHO LIVE IN CHRONIC PAIN

Considering the most recent celebrity to share that she lives with chronic pain – Lady Gaga, and how people jumped to conclusions as to what she is living with, I decided to point out here that to date, she has not said what her diagnosis(s) is besides chronic pain, if there is one that is more specific. She did say on an Instagram post dated May 31, 2015, “I still deal with bone inflammation from …

 

Helpful Resources For Pain Patients

International Pain Foundation www.internationalpain.org
Patient Advocate Foundation www.patientadvocate.org
U.S. Department of Health and Human Services www.hhs.gov
Substance Abuse & Mental Health Services www.samhsa.gov
Social Security Disability Offices www.ssa.gov
Medicare Office www.medicare.gov
Medicare Rights Center www.medicarerights.org
Cares Alliance www.caresalliance.org
The Medicine Abuse Project www.Drugfree.org
RX Assist www.rxassist.org
Patient Physician Trust Partnership www.pptp.org
Partnership for Prescription Assistance www.pparx.org
Patient Advocate Foundation www.patientadvocate.org
Pain Legislation www.patientawareness.org
RX Safety Matters www.RxSafetyMatters.org
Pain Advocacy Community www.InTheFaceofPain.com
Suicide Prevention 800-SUICIDE (784-2433)
 

DO YOU HAVE RELAPSED CLL?

If you have relapsed Chronic Lymphocytic Leukemia (#CLL), you can help forward medical research by participating in an important new clinical trial to test if adding an investigational medication (ublituximab) to ibrutinib (Imbruvica®), an FDA-approved treatment, improves outcomes for CLL patients with high-risk disease.

If you are interested, the full study details and eligibility criteria are listed here.

More about the study:

• The investigational drug is administered by infusion and the FDA approved …

 

Am I strong enough to go on this trip?

Ever wonder, am I strong enough to make it on a trip out of town?  In traveling nowadays, there are overcrowded terminals, flight delays, and security with which we have to contend. There are ways to make traveling easier and less stressful for chronic pain patients. My first suggestion is to pack your medications in a carry-on bag. If your luggage gets lost, you won’t have to worry about where or how to get your …

 

Why is it important to keep your own copies of your medical records, Part 2

My records have major mistakes
By Barby Ingle
(excerpt from The Pain Code Book)

Your medical record is comprised of all information generated during your treatment with all healthcare providers. The providers keep track of many aspects of your treatment, including personal, financial, social, and medical information. Many providers are using written forms and notes, but over the past few years, there are great electronic medical record keeping programs that are coming to the market. …

 

Why is it important to keep your own copies of your medical records, Part 1

Requesting Healthcare Records
By Barby Ingle
(excerpt from The Pain Code Book)

One thing I have learned over the years is how important it is to keep a copy of all of your medical records. My insurance companies have tried to force me into “step therapy” and without my medical records it would have been very difficult and long process to get through. I save my providers time as well, when I can fill out …

 

Why Barby Ingle Became a CureClick Ambassador and Now Serves On the CureClick Advisory Board
by Barby Ingle
Advisory Board Member, CureClick
President, Power of Pain Foundation

CC_BADGE_Ambassador_TAGBack in November, 2014 I received a request to become a CureClick Ambassador. What is this all about, I thought to myself? Is it helping pain patients and the chronically ill? After checking it out, I realized that this was a perfect tool to share clinical research trials with the pain community I work with. I also realized that is has far more reach than that, as my friends and followers pass it on to their connections. I personally have family members who have suffered multiple strokes, TBI and Alzheimer’s, COPD, vascular issues, quad-bypass surgeries, diabetes, RSD, etc. With over 130 million Americans living with a chronic illness it affects our entire population, either as a patient, caregiver, or provider. Since my start I have help recruit trail participants for chronic obstructive pulmonary disease (COPD), HR+, her2- breast cancer, memory loss or alzheimer’s disease, people at risk of developing early alzheimer’s disease, rheumatoid arthritis, severe asthma, type-2 diabetes with severe kidney disease and type-2 diabetes. There are more and more trials being updated and posted frequently. Three upcoming trials that I know of are pre-alzheimer’s, non-small cell lung cancer stage IV, and prostate cancer.

 

I love that I can share valuable education about the importance of clinical trials and help teach others about the research process. In the past few months I have been spreading the word about a new trials in addition to sharing statistics and why that trial is so important. I decided to write this blog post about my experiences for the last 5-6 months so that my friends, followers and members of the POPF understand why I got involved and why I am so proud to have been asked to be on the advisory board.

 

The resource area on the CureClick site include overview videos, more info on how rewards work, how I am being compensated, etc. For me personally, I have decided to donate the funds I raise to help the Power of Pain Foundation. My compensation comes in the form of Amazon Gift Cards. I deposit these cards into the POPF Amazon account, and when we need supplies or resources off of Amazon, we are able to purchase them with these funds. It has been working out great. To date I have raised $200 ($150 as an advisory board member, and $50 due to participation of those who have qualified to participate in the trials).

 

As new trials come open I will post information and a link on my social media accounts. My friends and followers will be informed readers when it comes to where to go to read about the trial and how to apply if they feel they are a good fit for the trial. All of the information I provide in my posts has been carefully worded, and then meticulously reviewed by a federally-regulated governing body known as the Institutional Review Board (IRB). This way my readers can know it is legit and accurate. A typical post from me will be with a graphic with information/education about the disease the trial represents, text such as the study title, purpose, study locations, eligibility criteria, and the link to check it out for yourself. I want your participation so that those you love in your life to get help with their illness in a proper and timely manner. The most important part to me is that I am educating all of you about trials and disease specific information on a variety of chronic diseases.

 

Can you become a CureClick Trial Ambassador? You can learn more about CureClick at http://curec.lk/1Gb4toG