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CLINICAL TRAILS; The Benefits and Risks

CLINICAL TRAILS; The Benefits and Risks
By Barby Ingle

I have been living with chronic diseases for the past 20 years. During this time, I have participated in several clinical trials. Some were big, some small, some were online only, some were produced by medical professionals. I know that there are some risks and benefits to the trials and know that they are not right for everyone. If you are …

 

The Importance of Health Communities

THE IMPORTANCE OF HEALTH COMMUNITIES; Medical Research Groups, Patient Advocacy Groups, & Patient Support Groups

By Barby Ingle, Columnist  

 

In 1995, I became the head coach for the Washington State University’s Spirit Program and a successful business owner. I was very athletic and health conscious. In 2002, I was in a minor car accident, which developed from a whiplash and brachia plexus injury into Reflex Sympathetic Dystrophy. I lost my job, marriage and sense …

 

Reality Rally Fundraiser to help Michelle’s Place

Reality Rally Fundraiser to help Michelle’s Place w breast cancer patients. 

Please help us raise funds for Michelle’s Place to help them support all the clients who need services during the fight of their lives with breast cancer. Any amount is greatly appreciated. This is my donation link, https://realityrally.givecorps.com/projects/18087-ken-and-barby-s-fundraiser Please donate and thank you” – Ken and Barby

https://shouttag.com/!/RealityRally/snp2Ow#snp2Ow

Reality Rally is the biggest gathering of Reality TV Celebrities in …

 

10 ACTIONS TO MAKE LIFE MORE POSITIVE AND UPLIFTING FOR YOURSELF

10 ACTIONS TO MAKE LIFE MORE POSITIVE AND UPLIFTING FOR YOURSELF – by Barby Ingle

  1. Choose happiness.
  2. Create goals and more towards accomplishing them.
  3. Get involved in projects that you can be interested in and successfully complete.
  4. Keep yourself surrounded with happy people.
  5. Look at the bright side of challenges.
  6. Motivate yourself.
  7. Practice meditation and controlling your thoughts.
  8. Smile big and often.
  9. Visualize success.
  10. When anxiety and stresses are high, turn it over to God.
 

Dental Tips When You Live With A Chronic Pain Disease

When you live with chronic illness and pain dental health becomes even more important. Here are a few of the tips I have learned over the past 20 years. 

  • Ask for “close your mouth breaks” if needed.
  • Brushing after vomiting can break down the enamel.
  • Have your teeth cleaned at least twice a year.
  • It is important for your dentist to know about CHRONIC PAIN.
  • Oral care starts at home.
  • Poor brushing can come from
 

CELEBRITIES WHO LIVE IN CHRONIC PAIN

Considering the most recent celebrity to share that she lives with chronic pain – Lady Gaga, and how people jumped to conclusions as to what she is living with, I decided to point out here that to date, she has not said what her diagnosis(s) is besides chronic pain, if there is one that is more specific. She did say on an Instagram post dated May 31, 2015, “I still deal with bone inflammation from …

 

Helpful Resources For Pain Patients

International Pain Foundation www.internationalpain.org
Patient Advocate Foundation www.patientadvocate.org
U.S. Department of Health and Human Services www.hhs.gov
Substance Abuse & Mental Health Services www.samhsa.gov
Social Security Disability Offices www.ssa.gov
Medicare Office www.medicare.gov
Medicare Rights Center www.medicarerights.org
Cares Alliance www.caresalliance.org
The Medicine Abuse Project www.Drugfree.org
RX Assist www.rxassist.org
Patient Physician Trust Partnership www.pptp.org
Partnership for Prescription Assistance www.pparx.org
Patient Advocate Foundation www.patientadvocate.org
Pain Legislation www.patientawareness.org
RX Safety Matters www.RxSafetyMatters.org
Pain Advocacy Community www.InTheFaceofPain.com
Suicide Prevention 800-SUICIDE (784-2433)
 

DO YOU HAVE RELAPSED CLL?

If you have relapsed Chronic Lymphocytic Leukemia (#CLL), you can help forward medical research by participating in an important new clinical trial to test if adding an investigational medication (ublituximab) to ibrutinib (Imbruvica®), an FDA-approved treatment, improves outcomes for CLL patients with high-risk disease.

If you are interested, the full study details and eligibility criteria are listed here.

More about the study:

• The investigational drug is administered by infusion and the FDA approved …

 

Am I strong enough to go on this trip?

Ever wonder, am I strong enough to make it on a trip out of town?  In traveling nowadays, there are overcrowded terminals, flight delays, and security with which we have to contend. There are ways to make traveling easier and less stressful for chronic pain patients. My first suggestion is to pack your medications in a carry-on bag. If your luggage gets lost, you won’t have to worry about where or how to get your …

 

Why is it important to keep your own copies of your medical records, Part 2

My records have major mistakes
By Barby Ingle
(excerpt from The Pain Code Book)

Your medical record is comprised of all information generated during your treatment with all healthcare providers. The providers keep track of many aspects of your treatment, including personal, financial, social, and medical information. Many providers are using written forms and notes, but over the past few years, there are great electronic medical record keeping programs that are coming to the market. …