I have the same struggles and needs as other chronic care patients. I face providers who don’t believe, don’t know, and/or don’t want to help. I fight for my proper and timely care… yes it takes energy. But it is less energy than going through the wrong procedure or treatment option from a provider who doesn’t know better.
I am willing to walk out when I do know better and they are unwilling to listen or learn. I am willing to not care if a provider rolls their eyes. I am willing to tell a provider they need more education and that they are not informed. I know first-hand that people like my husband’s sister in law are in the health-field and how purposefully hurtful they can be to patients in need, because of their own ignorance.
As a patient, when you call me from the hospital, I will tell you my best advice, fight for yourself, and be willing to leave to a different facility if the one you are in is not providing proper and timely care, as you know it should be.
Lately people seem to think that I get the best healthcare and have no bumps in the road.
I face the same challenges as all the rest of the chronic care patients face, the big difference in my care is I know I am paying the provider (through insurance when possible) to care for me. If they can’t do it, others can, and I move on. Please don’t be afraid to speak up or move on to someone who can assist you with proper and timely care. And if you are afraid, don’t let it hold you back from being your own best advocate.