Dental Tips When You Live With A Chronic Pain Disease

When you live with chronic illness and pain dental health becomes even more important. Here are a few of the tips I have learned over the past 20 years. 

  • Ask for “close your mouth breaks” if needed.
  • Brushing after vomiting can break down the enamel.
  • Have your teeth cleaned at least twice a year.
  • It is important for your dentist to know about CHRONIC PAIN.
  • Oral care starts at home.
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CELEBRITIES WHO LIVE IN CHRONIC PAIN

Considering the most recent celebrity to share that she lives with chronic pain – Lady Gaga, and how people jumped to conclusions as to what she is living with, I decided to point out here that to date, she has not said what her diagnosis(s) is besides chronic pain, if there is one that is more specific. She did say on an Instagram post dated May 31, 2015, “I still deal with bone inflammation from … Read the rest

 

How To Write A Pain Journal Entry

Undoubtedly, there has been progress made in recent years by healthcare professionals and patients towards understanding and properly managing pain. Unfortunately, pain still poses a problem for patients who are under-diagnosed, over-diagnosed or misdiagnosed. Controlling the pain you are in is essential to quality of life. Knowing the characteristics of pain and why it is happening give you an advantage in dealing and controlling aspects of pain. Taking control of your life and being responsible … Read the rest

 

Helpful Resources For Pain Patients

International Pain Foundation www.internationalpain.org
Patient Advocate Foundation www.patientadvocate.org
U.S. Department of Health and Human Services www.hhs.gov
Substance Abuse & Mental Health Services www.samhsa.gov
Social Security Disability Offices www.ssa.gov
Medicare Office www.medicare.gov
Medicare Rights Center www.medicarerights.org
Cares Alliance www.caresalliance.org
The Medicine Abuse Project www.Drugfree.org
RX Assist www.rxassist.org
Patient Physician Trust Partnership www.pptp.org
Partnership for Prescription Assistance www.pparx.org
Patient Advocate Foundation www.patientadvocate.org
Pain Legislation www.patientawareness.org
RX Safety Matters www.RxSafetyMatters.org
Pain Advocacy Community www.InTheFaceofPain.com
Suicide Prevention 800-SUICIDE (784-2433)
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There’s Such a Hysteria Going On When It Comes To Opioid Medication

There’s Such a Hysteria Going On When It Comes To Opioid Medication
By Barby Ingle

A few weeks ago I got a phone call from a ‘pain patient’ who said he was from California. He kept referring to questions that didn’t make sense based on his reported pain story. He ended his phone call saying he needed me to make sure that everyone vote for (his candidate of choice). I laughed first as I don’t … Read the rest

 

Bucket List – updated

In no particular order, my bucket list. It is a work in progress… last update 9/10/2016

  1. Dance 6-eight counts with Paula Abdul choreographed by both of us together
  2. Get a reading from Tyler Henry
  3. Get my own car
  4. Get one my favorite groups (schroeder) to play at a celebration of mine or iPain
  5. Get iPain on the TV show like Apprentice as a charity a celebrity plays for to raise awareness and funds
  6. Go down
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If Prince Had Gotten Proper Follow-Up, Could His Death Have Been Avoided?

By Barby Ingle and Emily Ulrich

 

When Prince passed away I was dealing with some migralepsy seizures and knew that I wasn’t going to say this how I wanted to. I turned to another writer and iPain Delegate Emily Ulrich to help me get my idea out. We worked to get this published but editors didn’t want to put it out without a doctor or healthcare professional who would sign on and be interviewed … Read the rest

 

CureClick Hypertension All-Digital Research Trial

CureClick Research

I have been working with CureClick for a few years now. I am currently serving on its Board of Advisers. As such, I get to preview and share some of the best research trials available to the health community. I have written about my connection with CureClick in the past but a few days ago a new opportunity came through. Something new to CureClick and me, and I got all excited. It is … Read the rest

 

Really?

There is absolutely no doubt in my mind that there is a lot of misinformation out in the pain community. I hear it in phone calls, emails, and see it on social media posts. Last week I was speaking to a woman who helped start a new fb group. She wanted me and International Pain Foundation to help support their upcoming survey after telling me it was just like the one the iPain and Pain … Read the rest

 

DO YOU HAVE RELAPSED CLL?

If you have relapsed Chronic Lymphocytic Leukemia (#CLL), you can help forward medical research by participating in an important new clinical trial to test if adding an investigational medication (ublituximab) to ibrutinib (Imbruvica®), an FDA-approved treatment, improves outcomes for CLL patients with high-risk disease.

If you are interested, the full study details and eligibility criteria are listed here.

More about the study:

• The investigational drug is administered by infusion and the FDA approved … Read the rest