Bucket List – updated

In no particular order, my bucket list. It is a work in progress… last update 9/10/2016

  1. Dance 6-eight counts with Paula Abdul choreographed by both of us together
  2. Get a reading from Tyler Henry
  3. Get my own car
  4. Get one my favorite groups (schroeder) to play at a celebration of mine or iPain
  5. Get iPain on the TV show like Apprentice as a charity a celebrity plays for to raise awareness and funds
  6. Go down
 

If Prince Had Gotten Proper Follow-Up, Could His Death Have Been Avoided?

By Barby Ingle and Emily Ulrich

 

When Prince passed away I was dealing with some migralepsy seizures and knew that I wasn’t going to say this how I wanted to. I turned to another writer and iPain Delegate Emily Ulrich to help me get my idea out. We worked to get this published but editors didn’t want to put it out without a doctor or healthcare professional who would sign on and be interviewed …

 

CureClick Hypertension All-Digital Research Trial

CureClick Research

I have been working with CureClick for a few years now. I am currently serving on its Board of Advisers. As such, I get to preview and share some of the best research trials available to the health community. I have written about my connection with CureClick in the past but a few days ago a new opportunity came through. Something new to CureClick and me, and I got all excited. It is …

 

Really?

There is absolutely no doubt in my mind that there is a lot of misinformation out in the pain community. I hear it in phone calls, emails, and see it on social media posts. Last week I was speaking to a woman who helped start a new fb group. She wanted me and International Pain Foundation to help support their upcoming survey after telling me it was just like the one the iPain and Pain …

 

DO YOU HAVE RELAPSED CLL?

If you have relapsed Chronic Lymphocytic Leukemia (#CLL), you can help forward medical research by participating in an important new clinical trial to test if adding an investigational medication (ublituximab) to ibrutinib (Imbruvica®), an FDA-approved treatment, improves outcomes for CLL patients with high-risk disease.

If you are interested, the full study details and eligibility criteria are listed here.

More about the study:

• The investigational drug is administered by infusion and the FDA approved …

 

April 17 to raise awareness about hemophilia and other inherited bleeding disorders

Join the World Federation of Hemophilia and all CureClick Ambassadors on April 17 to raise awareness about hemophilia and other inherited bleeding disorders. Globally 1 in 1,000 people has a bleeding disorder. Most are not diagnosed and do not receive treatment. Together we can change that. World Hemophilia Day provides an opportunity to talk to your family and friends, colleagues, and caregivers to raise awareness and increase support for those living with an inherited bleeding …

 

Am I strong enough to go on this trip?

Ever wonder, am I strong enough to make it on a trip out of town?  In traveling nowadays, there are overcrowded terminals, flight delays, and security with which we have to contend. There are ways to make traveling easier and less stressful for chronic pain patients. My first suggestion is to pack your medications in a carry-on bag. If your luggage gets lost, you won’t have to worry about where or how to get your …

 

Colorado Department of Health Care Policy and Financing (adf review)

March 21, 2016

Kelli Metz
Clinical Services Pharmacist
Colorado Department of Health Care Policy and Financing
1570 Grant Street
Denver, CO. 80203

RE:  April 5 PDL Drug Class Review (Abuse-Deterrent Formulations)

Dear Kelli,

On behalf of thousands of Coloradans who live with life-altering and debilitating pain, we urge you to protect and enhance access to safe medications.  It is critical that Colorado Medicaid cover the full range of treatments available for pain in the safest …

 

New Study for People with Mild to Moderate Alzheimer’s Disease

The purpose of this study is to investigate whether the study medication can help people with mild to moderate Alzheimer’s Disease improve their mental abilities such as understanding, reasoning, and judgment. The study medication will be given together with an FDA-approved Alzheimer’s medication: Aricept® (donepezil), Exelon® (rivastigmine) or Razadyne® (galantamine).

More about the study:

  • The study drug (MK-7622) is administered in the form of one capsule a day in the morning.
  • There will be 830
 

Barby’s Bucket List update

Barby’s Bucket List Update… This is ongoing and ever changing as I grow and make accomplishments. I think it is important to have life goals and things that we can look forward to doing. I dont know what order these will happen but I am constantly working on accomplishing them in conjunction with my life purpose to be a Cheerleader of HOPE and a Dancer for LIFE. Follow along with me to see which ones …